During the summer of 2025 eNAP conducted a huge survey among patients in Europe. We are happy to share the results of this survey that was created and completed by patients. We sincerely hope that the content will contribute in various ways to a better understanding and guidance for people living with Narcolepsy/Idiopathic hypersomnia (N/IH).The current report is freely available.
You can also check the newsletter with some highlights from the patient survey.
Collected survey data is available upon request for researchers after review of project proposal. Besides the reported frequency/numeric outcomes of the survey, also the free text responses are available for a qualitative investigation. There is also a report for a subsequent survey held among national N/IH patient organisations. Please email eNAP for more information or a request (enap@narcolepsy.eu)
